The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus - Université de Toulon Access content directly
Journal Articles Chronic Respiratory Disease Year : 2022

The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus

Craig Williams
  • Function : Author
Alan Barker
  • Function : Author
Sarah Denford
  • Function : Author
Samantha van Beurden
  • Function : Author
Mayara Bianchim
  • Function : Author
Jessica Caterini
  • Function : Author
Narelle Cox
  • Function : Author
Kelly Mackintosh
  • Function : Author
Melitta Mcnarry
  • Function : Author
Sarah Rand
  • Function : Author
Jane Schneiderman
Greg Wells
  • Function : Author
Peter Anderson
  • Function : Author
Daniel Beever
  • Function : Author
Z Beverley
  • Function : Author
Ronan Buckley
  • Function : Author
Brenda Button
  • Function : Author
Adam Causer
  • Function : Author
Máire Curran
  • Function : Author
Tiffany Dwyer
Warren Gordon
  • Function : Author
Ryan Harris
Elpis Hatziagorou
  • Function : Author
Asterios Kampouras
  • Function : Author
Lisa Morrison
  • Function : Author
Marietta Cámara
  • Function : Author
Clare Reilly
  • Function : Author
Abbey Sawyer
  • Function : Author
Zoe Saynor
  • Function : Author
James Shelley
  • Function : Author
Grace Spencer
  • Function : Author
Gemma Stanford
  • Function : Author
Don Urquhart
  • Function : Author
Rachel Young
  • Function : Author
Owen Tomlinson

Abstract

Background The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines. Method On 30 th June and 1 st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement. Results The final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements. Conclusion This consensus can be used to support health promotion by relevant stakeholders for people with CF.
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hal-03862230 , version 1 (14-03-2024)

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Craig Williams, Alan Barker, Sarah Denford, Samantha van Beurden, Mayara Bianchim, et al.. The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus. Chronic Respiratory Disease, 2022, 19, pp.147997312211216. ⟨10.1177/14799731221121670⟩. ⟨hal-03862230⟩

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